For Patients

Your Genetic Evaluation Journey

From your first appointment to understanding your results, here's what to expect at every step.

Referral

Your doctor refers you, or you contact us directly to start the process.

Records Review

We review your medical records and family history before your visit.

Genetic Counseling

Meet with a genetic counselor to discuss your history and testing options.

Sample Collection

A simple blood draw or saliva sample — no special preparation needed.

Results Review

Your results are explained in a dedicated appointment with your care team.

Follow-Up

We coordinate next steps with your doctors and provide ongoing support.

Understanding Genetic Testing

What is genetic testing?

Genetic testing looks at your DNA — the instruction manual for your body — to find changes (called variants) that may be causing health problems. Think of it as reading the blueprint to find where something may have been built differently.

What can genetic testing tell you?

The specific genetic cause of your symptoms or condition
Whether family members may be at risk for the same condition
Which treatments may work best for your specific genetic profile
Information to help with family planning decisions
An end to years of searching for answers

What genetic testing cannot tell you

Genetic testing does not predict the future with certainty. Not every genetic change causes disease, and some results may be uncertain. Our genetic counselors will help you understand exactly what your results mean and what they don't mean.

Insurance & Billing

Coverage

Most genetic testing is covered by insurance when it is medically indicated — meaning your doctor has determined it is necessary for your care. We work with all major insurance carriers including Medicare, Medicaid, and commercial plans.

Prior Authorization

We handle prior authorization on your behalf. Before any test is sent, we confirm coverage with your insurance company so there are no surprises. If a test is not covered, we will discuss alternative options with you.

Costs

Typical genetic testing costs range from $250 to $3,000 depending on the type of test. Many patients have minimal out-of-pocket costs when testing is medically necessary. Financial counseling is available if you have concerns about costs.

Preparing for Your Visit

Bringing the right information to your appointment helps us provide the best evaluation possible.

✓ Your insurance card and photo ID
✓ A list of your current medications
✓ Medical records related to your condition
✓ Previous genetic test results (if any)
✓ Family medical history (3 generations if possible)
✓ A list of specialists you have seen for this concern
✓ Questions you would like to ask during your appointment

Understanding Your Results

There are three main types of genetic test results. Your genetic counselor will explain what yours means.

Positive Result

A genetic change was found that explains your condition. This is a definitive molecular diagnosis that can guide treatment, predict outcomes, and inform family screening.

Negative Result

No genetic change was found. This does not always mean there is no genetic cause — it may mean current testing cannot detect the change. We discuss next steps and alternative testing options.

Uncertain Result (VUS)

A genetic change was found, but its significance is not yet clear. These results may be reclassified over time as scientific knowledge grows. We provide follow-up as new information becomes available.

Frequently Asked Questions

How long does genetic testing take?

Results typically take 2–8 weeks depending on the type of test. Gene panels return in 2–4 weeks, exome sequencing in 4–8 weeks, and genome sequencing in 6–10 weeks. Rapid sequencing for critical care patients returns in 3–7 days.

Is genetic testing covered by insurance?

Most genetic testing is covered when medically indicated. We verify coverage and obtain prior authorization before testing. Typical out-of-pocket costs range from $0 to a few hundred dollars for insured patients.

Do I need a referral from my doctor?

While many patients come through physician referrals, you can also contact us directly to discuss whether genetic evaluation is appropriate for your situation. We will coordinate with your primary care provider and any specialists involved in your care.

Will my results be shared with anyone?

Your genetic test results are protected health information under HIPAA. Results are shared only with you and the healthcare providers you authorize. The Genetic Information Nondiscrimination Act (GINA) provides additional protections against discrimination based on genetic information.

What if the test doesn't find anything?

A negative result does not always mean there is no genetic cause for your condition. Our current tests cannot detect every type of genetic change. If initial testing is negative, we discuss whether additional testing approaches, reanalysis of data as science advances, or other evaluations may be helpful.

Is a blood draw required?

Most genetic tests require a blood sample, which is a standard blood draw. In some cases, a saliva sample may be sufficient. Your care team will let you know what is needed for your specific test.

What is genetic counseling?

Genetic counseling is a conversation with a certified professional who helps you understand genetic testing: what it involves, what results may mean, and how they could affect you and your family. Genetic counselors are trained to explain complex information in plain language and support you through the process.

Can family members be tested too?

Yes. When a genetic change is found, we often recommend cascade testing for close family members. This helps identify who else may carry the same change and whether they need monitoring, preventive care, or treatment. Cascade testing is typically a simpler and less expensive test since we know exactly what to look for.

Ready to Get Started?

Contact us to schedule your genetic evaluation or learn more about our services.

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Long Genetics